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Global Patient Advocacy Coalition for Headache (GPACH)
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A collective of the most influential voices in migraine care, advocacy, research, patient education and empowerment
GPACH
The Global Patient Advocacy Coalition for Headache (GPACH) is a non-profit organization registered in Belgium. It is formed by headache specialists and patients collaborating together as volunteers to advance patient-centered advocacy for people with headache disorders across the globe. The organization thinks global and act local. GPACH was formed to unify patient advocacies around the world and leverage collective resources to drive meaningful change in migraine patient care. GPACH aims to reach health care providers, policymakers, people living with headache disorders and those around them to drive recognition of the impact of headache disorders on the individual and society.
GPACH board of directors
CHAIR: Audrey Craven (Ireland)
VICE-CHAIR: Olivia Begasse de Dhaem, MD, FAHS (Belgium/USA)
Fumihiko Sakai, MD (Japan)
Elisabetta Scanferla, PhD (Italy/France)
GPACH members
Daisuke Danno, MD (Japan)
Faraidoon Haghdoost, MD, PhD (Iran/Australia)
Muhammad Ismail Khalid Yousaf, MD (Pakistan/USA)
Publications
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Duburcq A, Molins M, Debremaeker S, Joie J, Lopes L, Nevoret C, Begasse de Dhaem O (corresponding). Overview of migraine care, impact of the disease and patient experience in France through patient voices: a cross-sectional and participatory survey study. The Journal of Headache and Pain. DOI: 10.1186/s10194-025-02018-y
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Sakai F, Igarashi H, Yokoyama M, Begasse de Dhaem O, Kato H, Azuma Y, Koh R, Phillips H, Singh N, Craven A, Dodick DW, Miyake H. Diagnosis, knowledge, perception, and productivity impact of headache education and clinical evaluation program in the workplace at an information technology company of more than 70,000 employees. Cephalalgia. 2023 Apr;43(4):3331024231165682. https://journals.sagepub.com/doi/full/10.1177/03331024231165682?rfr_dat=cr_pub++0pubmed&url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org
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Begasse de Dhaem O, Sakai F. Migraine in the workplace. eNeurologicalSci. 2022 Jun 6;27:100408. doi: 10.1016/j.ensci.2022.100408. https://pmc.ncbi.nlm.nih.gov/articles/PMC9237352/
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Vancouver Declaration II on Global Headache Patient Advocacy 2019. Dodick DW, Ashina M, Sakai F, Grisold W, Miyake H, Henscheid-Lorenz D, Craven A, Ruiz de la Torre E, Koh R, Reznik N, Bance L, Leroux E, Edvinsson L; International Headache Society Global Patient Advocacy Coalition. Vancouver Declaration II on Global Headache Patient Advocacy 2019. Cephalalgia. 2020 Sep;40(10):1017-1025. https://journals.sagepub.com/doi/10.1177/0333102420921162?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed
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Vancouver Declaration on Global Headache Patient Advocacy 2018. Dodick D, Edvinsson L, Makino T, Grisold W, Sakai F, Jensen R, Balch A, Ruiz de la Torre E, Henscheid-Lorenz D, Craven A, Ashina M. Vancouver Declaration on Global Headache Patient Advocacy 2018. Cephalalgia. 2018 Nov;38(13):1899-1909. https://journals.sagepub.com/doi/10.1177/0333102418781644?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed